MESSAGE
| DATE | 2023-04-16 |
| FROM | Ruben Safir
|
| SUBJECT | Re: [Hangout - NYLXS] Ancestry: interested in is where all my
|
On 4/16/23 22:26, Paul Robert Marino wrote:
> Sadly no they won't provide that, but you can get a copy as a data
there they are NOT compliant with the LAW
https://www.hhs.gov/hipaa/for-individuals/notice-privacy-practices/index.html
> file and use it with other services which allow you to upload it for
> ancestry analysis.some of those services don't keep a full copy after
> analysis, many of them have better data protections or at least the
> ability to opt out of data sharing, and allow you to use an alias.
> I'm not versed well enough in all of these ancestry-only services to
> feel confident in recommending any of them, but I know there are quite
> a few out there.
>
> On Sat, Apr 15, 2023 at 6:42 PM wrote:
>>
>> Really / Thanks, I didn't know about that.
>>
>> But what I am interested in is where all my ancestors originate from in far back history.
>>
>> i assume a hospital test does not do that ?
>>
>>
>> Gesendet: Samstag, 15. April 2023 um 17:44 Uhr
>> Von: "Paul Robert Marino"
>> An: ruth02-at-web.de
>> Cc: "Ruben Safir" , "Ancestry.com Customer Service" , "Harmon, Amy" , "rms" , "Hangout"
>> Betreff: Re: Re: [Hangout - NYLXS] Ancestry: Why ANONYMOUS testing NOT ALLOWED ?? | | do not mean the "company" anonomyzing the DNA
>> Yes I understood what you meant, I was explaining their model and why
>> they do not allow you to be anonymous on those services.
>> If you want to have your DNA scanned strictly for medical reasons only
>> (not ancestral data or to see who's related to you), you can do that
>> at a hospital or other medical office that offers the service in your
>> area and in that way privacy laws,and regulations about medical
>> documents for the country and region will apply to them. It is much
>> more expensive than those services but they actually do a full scan
>> not just the partial scan done by those services and as a result
>> reveal much more information, and your medical insurance may cover it
>> under certain circumstances.
>>
>> On Sat, Apr 15, 2023 at 4:39 PM wrote:
>>>
>>> Thanks for your response, but I see I need to explain more clearly: I do not mean the "company" anonomyzing the DNA, I mean giving the co. a DNA sample with the subject person
>>>
>>> NOT GIVING THEIR IDENTITY TO THE COMPANY AT ALL.
>>>
>>> The biggest danger to letting these co.'s have your DNA is to yourself, your children, grandkids, and all descendents into the future.
>>>
>>> If they identify some genetic defect, you and all your descendents could be denied employment, health and life and insurance, and more than you can imagine.
>>>
>>> That is my point. Can you find such a DNA decoding lab or company that will allow anonymous sample submissions ?
>>>
>>> I understand the answer is NO. That fact alone should tell you something !
>>>
>>> If you are aware of any such company, please provide info / link.
>>>
>>> Thanks !
>>>
>>>
>>> Gesendet: Samstag, 15. April 2023 um 15:38 Uhr
>>> Von: "Paul Robert Marino"
>>> An: ruth02-at-web.de
>>> Cc: "Ruben Safir" , "Ancestry.com Customer Service" , "Harmon, Amy" , "rms" , "Hangout"
>>> Betreff: Re: [Hangout - NYLXS] Ancestry: Why ANONYMOUS testing NOT ALLOWED ??
>>> I don't know specifically about Ancestry and their terms of service,
>>> but many of them do sell your genetic information for "research
>>> purposes"! I can tell you this from first hand experience having
>>> worked for an advertising company that bought that data for
>>> "research" related to marketing. They stopped offering the marketing
>>> product that used DNA because it wasn't profitable yet but I'm sure
>>> they weren't the only ones who tried it and it will be something the
>>> advertising industry will do in the future. As for if its anonymized
>>> or not by the companies they may vary but it is used in ways you would
>>> not expect reading the terms of service. here is just a few example
>>> https://nypost.com/2023/02/02/i-took-a-23andme-dna-test-and-cops-linked-me-to-a-murder/
>>> https://www.11alive.com/article/news/investigations/the-reveal/all-in-the-family-dna-investigation/85-179895c9-1b7e-4e93-8ab4-beae25a44a79
>>>
>>>
>>> On Sat, Apr 15, 2023 at 11:12 AM wrote:
>>>>
>>>> Ruben,
>>>>
>>>> my friend in the USA, who also is a friend of your also but I don't see on your forum anymore, told me something about these USA ancestry tests which i don't think are avilable in my country.
>>>>
>>>> he said that no matter how hard you try, none of these companies will let a person give a sample and have it analyzed on an ANONYMOUS basis.
>>>>
>>>> In other words, they don't allow giving a sample, paying for the service, but without identifying yourself.
>>>>
>>>> Now, why is that ??
>>>>
>>>> Appreciate any insights you can give.
>>>>
>>>>
>>>> Gesendet: Dienstag, 24. Januar 2023 um 21:48 Uhr
>>>> Von: "Ruben Safir"
>>>> An: "Ancestry.com Customer Service" , "Harmon, Amy" , "rms" , "Hangout"
>>>> Betreff: Re: [Hangout - NYLXS] Ancestry
>>>> On 1/24/23 17:55, Ancestry.com Customer Service wrote:
>>>>
>>>> _______________________________________________
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>>>> Hangout-at-nylxs.com
>>>> http://lists.mrbrklyn.com/mailman/listinfo/hangout
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