MESSAGE
| DATE | 2023-04-15 |
| FROM | Ruben Safir
|
| SUBJECT | Re: [Hangout - NYLXS] Ancestry: Why ANONYMOUS testing NOT ALLOWED
|
On Sat, Apr 15, 2023 at 05:44:15PM -0400, Paul Robert Marino wrote:
> If you want to have your DNA scanned strictly for medical reasons only
> (not ancestral data or to see who's related to you), you can do that
> at a hospital or other medical office that offers the service in your
> area and in that way privacy laws,and regulations about medical
> documents for the country and region will apply to them.
The fact that they aren't a hospital doesn't preclude them from securing
your data in the HIPA
> It is much
> more expensive than those services but they actually do a full scan
> not just the partial scan done by those services and as a result
> reveal much more information, and your medical insurance may cover it
> under certain circumstances.
>
> On Sat, Apr 15, 2023 at 4:39???PM wrote:
> >
> > Thanks for your response, but I see I need to explain more clearly: I do not mean the "company" anonomyzing the DNA, I mean giving the co. a DNA sample with the subject person
> >
> > NOT GIVING THEIR IDENTITY TO THE COMPANY AT ALL.
> >
> > The biggest danger to letting these co.'s have your DNA is to yourself, your children, grandkids, and all descendents into the future.
> >
> > If they identify some genetic defect, you and all your descendents could be denied employment, health and life and insurance, and more than you can imagine.
> >
> > That is my point. Can you find such a DNA decoding lab or company that will allow anonymous sample submissions ?
> >
> > I understand the answer is NO. That fact alone should tell you something !
> >
> > If you are aware of any such company, please provide info / link.
> >
> > Thanks !
> >
> >
> > Gesendet: Samstag, 15. April 2023 um 15:38 Uhr
> > Von: "Paul Robert Marino"
> > An: ruth02-at-web.de
> > Cc: "Ruben Safir" , "Ancestry.com Customer Service" , "Harmon, Amy" , "rms" , "Hangout"
> > Betreff: Re: [Hangout - NYLXS] Ancestry: Why ANONYMOUS testing NOT ALLOWED ??
> > I don't know specifically about Ancestry and their terms of service,
> > but many of them do sell your genetic information for "research
> > purposes"! I can tell you this from first hand experience having
> > worked for an advertising company that bought that data for
> > "research" related to marketing. They stopped offering the marketing
> > product that used DNA because it wasn't profitable yet but I'm sure
> > they weren't the only ones who tried it and it will be something the
> > advertising industry will do in the future. As for if its anonymized
> > or not by the companies they may vary but it is used in ways you would
> > not expect reading the terms of service. here is just a few example
> > https://nypost.com/2023/02/02/i-took-a-23andme-dna-test-and-cops-linked-me-to-a-murder/
> > https://www.11alive.com/article/news/investigations/the-reveal/all-in-the-family-dna-investigation/85-179895c9-1b7e-4e93-8ab4-beae25a44a79
> >
> >
> > On Sat, Apr 15, 2023 at 11:12???AM wrote:
> > >
> > > Ruben,
> > >
> > > my friend in the USA, who also is a friend of your also but I don't see on your forum anymore, told me something about these USA ancestry tests which i don't think are avilable in my country.
> > >
> > > he said that no matter how hard you try, none of these companies will let a person give a sample and have it analyzed on an ANONYMOUS basis.
> > >
> > > In other words, they don't allow giving a sample, paying for the service, but without identifying yourself.
> > >
> > > Now, why is that ??
> > >
> > > Appreciate any insights you can give.
> > >
> > >
> > > Gesendet: Dienstag, 24. Januar 2023 um 21:48 Uhr
> > > Von: "Ruben Safir"
> > > An: "Ancestry.com Customer Service" , "Harmon, Amy" , "rms" , "Hangout"
> > > Betreff: Re: [Hangout - NYLXS] Ancestry
> > > On 1/24/23 17:55, Ancestry.com Customer Service wrote:
> > >
> > > _______________________________________________
> > > Hangout mailing list
> > > Hangout-at-nylxs.com
> > > http://lists.mrbrklyn.com/mailman/listinfo/hangout
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