MESSAGE
DATE | 2023-01-24 |
FROM | Ruben Safir
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SUBJECT | Re: [Hangout - NYLXS] Ancestry
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On 1/24/23 17:55, Ancestry.com Customer Service wrote: > * * > > > > January 24, 2023 > > > > Dear Mr. Safir, > > > > Thank you for your interest in Ancestry®. > > > > We appreciate your feedback and appreciate you taking the time to share > your concerns. > > > > When you make new discoveries with us, we want you to be confident that > we are good stewards of your personal information. Our customers have > trusted us with personal information for over 20 years―and we’re > committed to helping ensure you feel just as secure today. > > > > For your convenience, we have included further information in the links > below: > > > > Ancestry Privacy Center > > Ancestry Privacy Statement > > > > > Sincerely, > > > > *Emily* > > Executive Office > > We empower journeys of personal discovery to enrich lives. >
That is all good and well but you're click through license sweeps all that away and forces me to hand over all rights of my DNA to YOU in order to get a service I already paid for. It is grossly unethical. And it is not acceptable, Remove the last rider which states clearly that you will have the right to use our DNA to create new products and services at ***YOUR*** will, without my permission or further authorization.
It matters not at all what the privacy policy is once someone agrees to that click through license in order to get the DNA processed by your labs.
Do I need to send a screen capture of the click through agreement again?
Ruben Safir NYLXS
> > > -----Original Message----- > From: Ruben Safir > Sent: Friday, January 20, 2023 11:00 AM > To: Ancestry.com Customer Service > Subject: [EXTERNAL] Re: are you still writing > > > > This was sent to Amy Harmon of the NY Times, who I have some aquentince > and also asked others familiar with the rights issues involved. There > is a big problem with your click and go linces for the DNA testings > > > > Please remove the last ride on the agreement: > > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > Have you ever looked at the conflicting legal and civil rights problems > involved with DNA testing? For example on Ancestoy.com they have THIS > in the privacy statement: > > ancestry.com > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > Genetic Information Ancestry uses your Genetic Information for the > > following primary purposes: > > Delivering ethnicity results, DNA matches (e.g., close or extended > family or others to whom you may be related) from our database, and > other information to help you and other users learn more about each > other, potential family members, as well as your genetic relatives and > family groups; Connecting you with and helping you learn about your > genetic relatives in our database through features such as DNA matching > or other product features; Providing you with other insights into what > your DNA may reveal about traits, and wellness; Providing relevant > results to assist you in discovering common ancestors and other details > about your family history, as well as helping you build your family tree > or connect with friends and family; Studying aggregated Genetic > Information to better understand population and ethnicity-related > health, wellness, aging, or physical conditions; Conducting scientific, > statistical, and historical research; and, Improving features and > functionality in our existing DNA-related products, enhancing the > customer experience across Ancestry Services, improving the quality of > our laboratory processes and technology, and building new products and > services. > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > > > > OK - that is already fairly broad permisions that one forks over to > them. In fact maybe to broad. So you buy the kit with intent to > discover facts about your DNA and how you fit in the with the family of > mankind, and to find relative. You have to expose yourself to some > sharing of private data if you want that to work. After buying it and > reading the privacy stuff and advertising, you then you have to activate > it. To activate it, you give permisions and rights to Ancestery with a > click license with a whole NEW set of rights to Ancestory ... or you > can't procede. See the4 screen capture which is attached. > > > > The last line is an open ended rider that gives Ancestery complete > rights to use and moneterize your DNA information as they see fit, > blacketedly. > > > > This is a huge problem and has been looked at in frontline, if I recall > correctly. They are asking for full copyright and "intellectual" rights > to your personal medial and health information as it related to DNA or > you can't get what you paid for. At minimum it is a bait and switch. > > More importantly, it is a huge civil rights issue. > > > > > > PS - > > Loved the work on the last maskers. I feel you could had tapped a > deeper story though. > > > > > > On 3/20/16 09:28, Harmon, Amy wrote: > >> Hi Ruben, > >> > >> I’ve definitely been in a bit of a writing slump, and am trying to > pull out of it! Not a great place to be given that there will likely be > a big round of layoffs at the Times this year. However, I do have a > bunch of things in the works, and I think all should be well - thanks > for noticing, anyway. I’m not following the Wikipedia brouhaha, what’s > going on? > >> > >> Amy > >> > >> > >> > >> > >> > >>> On Mar 20, 2016, at 5:00 AM, Ruben Safir > > wrote: > >>> > >>> Amy > >>> > >>> what's going on with you? Are you working on something? I want to > >>> ask you about the political happening on wikipedea and the rapid > >>> reduction in its volunteers and supporters. It is very odd. Are you > >>> aware of any back noise on this or anyone working on a story involved > >>> with it? It is the top 5 hits on every web search so you would think > >>> someone would be reporting about its evolving political structure. > >>> > >>> In addition.... HELLO. When I try to talk to you via facebook, your > >>> not talking... only Scott :) > >>> > >>> Ruben > >>> > >>> > >>> > >>> > >>> On Wed, Mar 13, 2013 at 07:36:39AM -0400, amy harmon wrote: > >>>> ---------- Forwarded message ---------- > >>>> From: amy harmon > > >>>> Date: Wed, Mar 13, 2013 at 7:35 AM > >>>> Subject: Re: are you still writing > >>>> To: Ruben > > >>>> > >>>> > >>>> I forgot to tell you about that e-book. It's just an expanded > >>>> version of a story I wrote in 2011. But it took some work, and the > >>>> Times (and > >>>> I) hope they will make some extra $ from getting it out to people > >>>> who didn't see the story in the paper, or who want a fuller version. > >>>> I AM steering away from autism, with my two stories in the works - > >>>> so I am following your advice, for my new material, which will be > >>>> done....soon, I hope! > >>>> A > >>>> > >>>> On Sat, Mar 2, 2013 at 12:13 AM, Ruben > > wrote: > >>>>> On 03/01/2013 09:30 PM, amy harmon wrote: > >>>>>> > >>>>>> Ha, yeah. My editors want to know too. Yes - I am working on two > >>>>>> long things at once. All in good time! But thanks for noticing. > >>>>>> amy > >>>>>> > >>>>> > >>>>> You know that I have trepidation being to personal with you because > >>>>> of your (increasingly large) celebrity status, but as a friend who > >>>>> has watched you work for almost as long as you have been writing, > >>>>> let me give you 3 very small pieces of advise, or brotherly > observation. > >>>>> > >>>>> A) You might decide to move on, and off the subject of autism at > >>>>> this point because it will increasingly define your public image > >>>>> and work, and stifle your growth. Over the years you have been > >>>>> very good at knowing when to move on. But your status over the > >>>>> last year has shot through the roof and it might be very tempting > >>>>> to get yourself wrapped up in these past achievements when you > still have so much more to contribute. > >>>>> > >>>>> B) Your up to 800 facebook friends and are adding them very > >>>>> rapidly of late. Just saying you might need some PR advisement at > >>>>> this point :) (look up Jill Seigel maybe ). I think your going to > >>>>> need a celebrity facebook page. It's the acceleration of the > >>>>> process that should make you rethink the approach. You have your > >>>>> family pictures up, your daughters comings and goings, vacations > >>>>> etc. You might need to start to protecting yourself better and > >>>>> making sure you still maintain the space you need in order to > continue to be productive. > >>>>> > >>>>> C) You so need to write a book!!! That is just selfish on my part. > >>>>> Your soooo good and personalizing technical, scientific and medical > >>>>> issues that are riffling the cultural landscape. There is so much > >>>>> solid ground here for a book pointed at the layman. > >>>>> > >>>>> ~~~ Ruben > >>>>> > >>>>> PS - need pop's vedning location in SoHo PSS - give Scott my > >>>>> affections. > >>>>> PSSS - A Penis Museum? Really Amy. :) > >>>>> > >>>>> > >>>>> > >>>>> > >>>>>> > >>>>>> The last thing I've seen is in December. What's going on? > >>>>>> > >>>>>> Ruben > >>>>>> > >>>>>> > >>>>>> > >>>>>> > >>>>>> -- > >>>>>> > >>>>>> ---------------------------------------- > >>>>>> Amy Harmon > >>>>>> New York Times > >>>>>> (212) 556-1505 > >>>>>> amy-at-nytimes.com > > twitter.com/amy_harmon > >>>>>> > >>>>>> 23-2521_amy-5Fharmon&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70Jt > >>>>>> B5RJ2xB2OpU8uj2qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6 > >>>>>> WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=ZkN9wbLny0O_VcK3sgjL73rajlJn > >>>>>> Cq_vvzk8krzSZR8&e= > > >>>>>> > >>>>>> topics.nytimes.com/top/reference/timestopics/people/h/amy_harmon/i > >>>>>> ndex.html > >>>>>> > >>>>>> s.com_top_reference_timestopics_people_h_amy-5Fharmon_index.html&d > >>>>>> =DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW > >>>>>> 5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs- > >>>>>> 4md7MzdyfnMre&s=3HN_XQHpn1exwNooIMnbWNBLQ-dUgUNLhHnFbCVNFgU&e= > > >>>>> > >>>>> > >>>> > >>>> > >>>> > >>>> -- > >>>> > >>>> ---------------------------------------- > >>>> Amy Harmon > >>>> New York Times > >>>> (212) 556-1505 > >>>> amy-at-nytimes.com > >>>> twitter.com/amy_harmon > >>>> topics.nytimes.com/top/reference/timestopics/people/h/amy_harmon/ind > >>>> ex.html > >>>> > >>>> > >>>> -- > >>>> > >>>> ---------------------------------------- > >>>> Amy Harmon > >>>> New York Times > >>>> (212) 556-1505 > >>>> amy-at-nytimes.com > >>>> twitter.com/amy_harmon > >>>> topics.nytimes.com/top/reference/timestopics/people/h/amy_harmon/ind > >>>> ex.html > >>>> > >>>> . > >>> > >>> -- > >>> So many immigrant groups have swept through our town that Brooklyn, > >>> like Atlantis, reaches mythological proportions in the mind of the > >>> world - RI Safir 1998 > >>> https://urldefense.proofpoint.com/v2/url?u=http-3A__www.mrbrklyn.com& > > >>> d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5O > >>> agOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7M > >>> zdyfnMre&s=tpF64qo4bbWh2SmqxPKRzzlwTGu8_s46VRJpqp-7S4Y&e= > >>> > >>> DRM is THEFT - We are the STAKEHOLDERS - RI Safir 2002 > >>> https://urldefense.proofpoint.com/v2/url?u=http-3A__www.nylxs.com&d=D > > >>> wIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5OagO > >>> > wrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=wnQGJxGCUySaeoUsR_n6t45-_dmJ3GvDY9LD2P6L0Uo&e= - Leadership Development in Free Software https://urldefense.proofpoint.com/v2/url?u=http-3A__www2.mrbrklyn.com_resources&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=SgctcOJKMru2zxMwU8Pk5FqJh3-WJrNuQ_JBF9wuYIA&e= - Unpublished Archive https://urldefense.proofpoint.com/v2/url?u=http-3A__www.coinhangout.com&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=CyulUId8x0z_chodz8IH8IkQgltFCpf5DSlw5AJPvt4&e= - coins! > >>> https://urldefense.proofpoint.com/v2/url?u=http-3A__www.brooklyn-2Dli > > >>> ving.com&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2 > >>> qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnk > >>> NXs-4md7MzdyfnMre&s=YN46WUKbZECRLlOxWBRMGss_8sYZ94kVXbCL1lI_wPU&e= > >>> > >>> Being so tracked is for FARM ANIMALS and and extermination camps, but > >>> incompatible with living as a free human being. -RI Safir 2013 > >>> > >> > >> > > > > -- > > So many immigrant groups have swept through our town that Brooklyn, like > Atlantis, reaches mythological proportions in the mind of the world - RI > Safir 1998 > https://urldefense.proofpoint.com/v2/url?u=http-3A__www.mrbrklyn.com&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=tpF64qo4bbWh2SmqxPKRzzlwTGu8_s46VRJpqp-7S4Y&e= > > > > DRM is THEFT - We are the STAKEHOLDERS - RI Safir 2002 > https://urldefense.proofpoint.com/v2/url?u=http-3A__www.nylxs.com&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=wnQGJxGCUySaeoUsR_n6t45-_dmJ3GvDY9LD2P6L0Uo&e= - Leadership Development in Free Software https://urldefense.proofpoint.com/v2/url?u=http-3A__www2.mrbrklyn.com_resources&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=SgctcOJKMru2zxMwU8Pk5FqJh3-WJrNuQ_JBF9wuYIA&e= - Unpublished Archive https://urldefense.proofpoint.com/v2/url?u=http-3A__www.coinhangout.com&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=CyulUId8x0z_chodz8IH8IkQgltFCpf5DSlw5AJPvt4&e= - coins! > > https://urldefense.proofpoint.com/v2/url?u=http-3A__www.brooklyn-2Dliving.com&d=DwIDaQ&c=kKqjBR9KKWaWpMhASkPbOg&r=ugzdE70JtB5RJ2xB2OpU8uj2qJb5KuW5OagOwrEIzMc&m=A1TVEbiR5A1U6-rACelxAKiH_f5p6WUOXDuzSGWzxB2wOnkNXs-4md7MzdyfnMre&s=YN46WUKbZECRLlOxWBRMGss_8sYZ94kVXbCL1lI_wPU&e= > > > > Being so tracked is for FARM ANIMALS and extermination camps, but > incompatible with living as a free human being. -RI Safir 2013 >
-- So many immigrant groups have swept through our town that Brooklyn, like Atlantis, reaches mythological proportions in the mind of the world - RI Safir 1998 http://www.mrbrklyn.com
DRM is THEFT - We are the STAKEHOLDERS - RI Safir 2002 http://www.nylxs.com - Leadership Development in Free Software http://www2.mrbrklyn.com/resources - Unpublished Archive http://www.coinhangout.com - coins! http://www.brooklyn-living.com
Being so tracked is for FARM ANIMALS and extermination camps, but incompatible with living as a free human being. -RI Safir 2013
_______________________________________________ Hangout mailing list Hangout-at-nylxs.com http://lists.mrbrklyn.com/mailman/listinfo/hangout
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